General Chat

with you , especially for parents of children with aspergers, in the last year many of you supported me in hoping david would find some security in a job or college, he chose college first, but because he wasn't getting the help he was supposed to get he left, with no communication from the college.
i wasn't ever told that he should have had transistion help which thanks to daff i have been to connexions to find out why we were let down, of course they passed the buck.
david tried a job in the kitchen of a restraunt, he was promoted he left ( children/adults with aspergers cant handle change), i asked david what job did he think he could do, he said he wanted to work outside so i phone every builders merchents in a 40 mile radious, some one took him on, the first week at work was great i would look forward to him comming home telling me builders tales, however the next week he was working in a different area so he nver went back i didn't realise what was happening at the time twould have been different, i found out to day at the doctors that he had attempted suicide last week from frustration and depression common in this condition, i was aware he was low and i was concsious that he may try and kill himself as he had done it lots of times before, but today i demanded help and someone from the mental health team will contacting me any day, anyone any experiance of them t hat you could let me know by pm or here i would be very great full many thanks xxx

Puss
my experience of the mental health team isnt a good one seems to take ages to get anything done and then when they say things they will do they never happen. Am over 18months down the line with them and still no further appt to get laddo assessed is only because of one of the associated team members that we are so far along and shes the one that has said he will more than likely be diagnosed with aspergers.

Adult mental health may be different and quicker I know a friend was under them but wasnt for Aspergers.

Hope you get some help.

d x

in the National Health Service as a whole, Mental Health is at the bottom of the pile and I can say this because I have seen it time and time again after working in a psychiatric hospital for nearly thirty years

Hope you get the help you need,


(((((hugs))))),
Karen x

thanks girls
dawn i can understand your frustration it took me 10 yrs , to get a diagnosis, people would tell me david was autistic id never heard of it, but when i mentioned it to doctors i was told not to listen to people, i thought about suing but his records went missing, i wouldnt have had the strengh to sue and who would i be suing, i dont even like getting my petrol allowance back as we live 21 miles from the nearest one.waffled on there sorryxx, a vollunteer barnardos helper watch him one day , and said what he had then of course it was diagnosed by the doctor who had been seeing him its so hard when your ill yourself too xx

Oh Puss that is a dreadful thing for you to hear.
Bless his heart. Why is it that the whole world always joins hands to help..... after the event?

You have done very well fighting for David, and congratulations.
Just keep it up.
He will be fine, and it will be because of what you are doing for him.

Chin up.
Deanna XXX

I did not see you there Dawn.... You just keep fighting too.
You have to win, they are your boys.... and you are doing your very best.
love
Deanna XXX

thanks deanna its like a black cloud hanging over you expect dawn feels it too, but you all help with your support and im greatfull xx

((((((Hugs)))))))

Puss do hope you and David get the help and support you so richly deserve always here if you need to talk.

Love and hugs Linda xx

Puss
Just wanted to say keep strong.
Sharon x

HI

I'm not sure how old David is but if he is under 18 then the support offered will be from CAMHS. While the services they offer are good, they are usually underfunded, understaffed and have huge waiting lists.

Try contacting the National Autistic Society who are a mine of information.

Also think about joining this forum, they are a group of fantastic parents with a wealth of experience and have a vast amount of knowledge between them.

http://www.asdfriendly.org

I understand how stressful it is having a child with Aspers...I sometimes feel like giving up.

But I won't.

Sue
xx

Edited: to say contact social services either adults/children (not sure of David's age) regarding an assessment for services for his learning disability. I find Aspergers tends to get put in the mental health catagory (with less services on offer) instead of learning disabled.

Sorry,

it was me who deleted......Posted instead of Pming

Susan
x

We have a step grandson aged 8 who goes to a special day school. Even then they change their minds like you change your drawers!! sometimes he cant speak cos he needs speech therapy, then he doesn't need speech therapy cos he has a short attention span and cant get himself around the sounds he needs to imitate ,in other words he doesn't co-operate!!.He is at school with some really handicapped kiddies who seems to spend their day in a wheelchair with no interaction with anyone. i sometimes think cos he has some interaction skills he is left to his own devices. He still poos himself about 5 times a day but still cant get to why,the pediatrician just says he doesn't go all in one GO!!! because he likes the feel of the poo as a comfort blanket . WELL daughter doesn't fancy having him laid down on the floor so she can clean him up at aged 15 plus!!.
Yes he has a syndrome NO they cant put a name to it but we know it does have autistic tendencies cos he lines up his cars , doesn't like loud noises ,and he doesn't like to be surprised with visitors ,he has to be told nanny & grandad .or whoever are coming to see on XXX day or evening. SO if us lay people can see it why cant the doctors

I had to delete ,,.the site is playing up and it got posted twice.

hugs and love.tee.

Puss, sorry you are having so much difficulty getting David the help he needs, and sad that he is so low at the mo.
I don't want to be a wet blanket but don't pin too much hope on help from Mental Health people unless yours are better than in Norwich. I have been fighting for help with my ocd for 14 years and still nothing, get assessed and told different things, sent away to find my own counselling etc etc. It is a non stop battle and as you say, even more difficult when you aren't well yourself.
If you don't get the help you should, maybe it is worth talking to your local mp, and see if they can stir things up to get what is needed for David.
Good luck
Lizx

(((hugs)))

xx

Hi
I have just been reading this post , I hope things work out for you Ladylol Pussercat
If you check your messages i have sent you some info which i think may help you and David .

Good Luck
Martin

Oh Puss I've only just seen this.......sending you and David a huge (((HUG))).......hope you get the help and support you both need xx