General Chat

After fighting for just over 6 months to get an answer to my chronic post op pain I finally have a scan booked on Tuesday.

I can see no point in going back into theatre again for another pain block as the last one didn't work.

I won't bore you all with the agony and symptoms I have had since Jan 4th but I have been at wit's end with this but gave in and now take morphine which I didn't want to take because the drug and I don't suit each other.

Once they have ruled out (hopefully) vascular damage then perhaps I can get a proper diagnosis and treatment. The last muttering from the surgeon was scraping the muscle away from the bone...nice!

Physio referred me to a podiatrist and I have a higher insole now, not high enough yet but the adjustment has to be gradual to get to 3/4".

If it wasn't for my GPs, physios, nurses I would have been left to get on with it!

I have a big mouth but what about those patients who won't or can't make a fuss, it's them I feel sorry for when treatment fails.

Sue xx

Wishing you the very best of luck Sue, hope all goes to plan and you are pain free (or the pain is at a level that does not need morphine).

(((((gentle hugs)))))

Tina xx

What a horrid time you have had, Sue! Wishing you good news on Tuesday...BC XX

Good luck for Tueday Sue..................it is sad that you've had to fight so hard to try and get yourself mobile again.

I hope the outcome is good for you.

All the best Sue, just as well you have a big gob(lol),
xxxxxxxxxxxxx

good look babes will be thinking of you
hope tuesday will bring good news
luv n hugs
stray
xxx

So sad that you have had to fight so hard to find the reason for your pain. Wishing you luck with your appointment and hoping that you will soon be pain free.

ann
glos

Wishing you all the best Sue, and I hope whatever treatment you have works this time and you can get your life back.

I feel awful that I spent so much time reassuring you about the op and then for all this to happen to you. I do appreciate how well my own went.

I'll be thinking of you xxx

Good luck Sue, hope all goes well, and don't forget.... you tell them your symptoms.... they do not tell you!
So many never listen.
Best of luck love
Deanna X

Good luck for Tuesday Sue, I will be thinking of you, let's hope they can find what's wrong and get you sorted this time.

Caz xx

good luck sue for tuesday,
your soo right, so many dont complain, hope this will encourage more people to shout out.... :)
take care, kaz xxxx

good luck, hold on in there, I am sure that they will soon find the reason for your pain, and then you will be able to get on with your life.

http://www.medicinenet.com/sarcoidosis/article.htm

here karen, very informative, use to called Hutchinson's disease or Boeck's disease..
take care, kaz xx

Kaz ,
Thankyou , we didn't even know it was previously called that , we know so little , Mommy longlegs has been very helpful , but again she is limited as not enough research has been done .

Sue good luck again .xxx

Thank you all for the replies.

Karen it was my Caroline who received a letter through the post saying she was sarcoid not MS. She has now had apologies from her MS nurses -her 'consultant on a mission to disprove her diagnosis' was talking out of his *rse!

They have guaranteed that she will never see that twerp again..lol

Sorry about hubby's diagnosis, there are people on GR who can help.

Sue xx

Good luck on Tuesday, Sue.

It is a sad fact that if you don't shout loudly, you get shoved aside and left to get on with things, not the way it should be but dreadful that we have to question things and push to get the right treatment or even a bit of respect from the doctors, etc, some of whom think they should be on pedestals and bowed down to.
Hope things improve soon for you.
Lizxx

Fingers crossed for you Sue ,
will be thinking of you on Tuesday.
Hazelx

Hi Sue,

I want to wish you all the very best for Tuesday, your strength is an inspiration. I hope all goes well and you get some results,


Big hugs,


Caz xxxxx

Dear Sue - all good wishes for Tuesday - do hope it works out well for you.

Special Love & Cuddles just for you
Steph xxx

Sue,



Am hoping and praying that all will be well with you..



(((( Hugs ))))



Lindy xx