General Chat

Good morning

For just about two years I have had a fantastic thread about my Great niece ZZ. Who has cystic Fibrosis and she has battled her way through life.
So many people have supported me and my family at very difficult times, and have given so much advice and kind thoughts.
I forgot to add that ZZ had her 2nd birthday recently but could not do so as the thread has disappeared.

I have no idea why this is.

So just to say to anyone who helped before I hope that you see this new thread and come back to us.

ZZ was seen by her consultant recently and whilst they are delighted with her fighting spirit her condition has worsened. However after some tears we are still being positive, still hoping for a breakthrough in the research etc.

I am going back to the UK tomorrow, and will not on this occasion be in her part of the country but I will add any updates.

Have a good day everyone and I hope that you all see this new thread.

Bridget :-D

A little nudge as several people have asked about ZZ. So having learnt that it was deleted I thought I would start again

Bridget

:-)

I know I added to your other thread, it is a shame it has gone. We had some very scary moments with my son (who also has Cystic Fibrosis) when he was younger, but he has battled through them all, so far, and with the great help of the medical team at Great Ormond St, The London Chest Hospital and now Papworth hospital. He is now 44 years old, in full time work (which we were told many years ago, would never happen). One day, hopefully, there will be a cure for this disease. Keep positive, as we have done for all these years.

Val (in North Herts)

Bridget,
So Sorry little Zee is now worse. You have had so much to think about lately. I hope your granddaughter is healing well.
Sylvia xx
























<3

Val, thank you for posting. I havevwondered if GR would be able to reinstate the old thread,
I had no idea that your son has battledcagainst and won his way through this sad condition. You give me so much hope.

Sylvia

Thank you for your kind words. My mother used to tell me that he above only gives us challenges that we can cope with! I hope she was right.
We are now in the UK , and will soon be heading off to Norfolk to stay with our friends. Then on Monday I hope to see my granddaughter.

I will be posting on my Daily Diary

Bridget

Have just seen this thread, Bridget. I often think of little ZZ. I hope that she continues to be the happy, determined and inspiring little girl that she has always been and that her health will soon match her tremendous spirit.

Val M, your words of encouragement are a blessing to all families affected by CF
Well done to your son for batteling so well against this terrible disease.
To to all the family for being by his side through thick and thin.


Bridget, I am amazed that your other thread has gone! WEhat on earth are GR up to?

Have a lovely time in the UK, hope that the weather is as good in Norfolk as it is in the West Midlands.

Tess

Sorry everyone for taking so long to reply. My iPad is the only vomp I have with me and OH has used it quite a lot. Then my subscription was late and for some reason my bank card was not being accepted, until OH used it yesterday for my renewal and so I am back.
I will be speaking to my sister in the next few days so will add another update after that chat.

Take care

Bridget

My apologies for not coming back earlier.
I have had a chat with my sister and ZZ has had her check which was not very encouraging. ZZ is now on stronger medication and has to have injections each day for the next three weeks. Her appetite is not as good as we would like but at least she is eating. She will be seen again in two weeks time, unless she needs to be seen earlier.

Please keep your positive thoughts and prayers alive as we do find great solice knowing that so many people care about her and the family.

Best wishes to you all,

Bridget

Bridget.
Sending positive thoughts and lots of love to ZZ. Praying she gets well soon and regains her strength.

Love Sylvia xx
<3

So you are in my neck of the woods, Bridget. I don't suppose you will get as far as Norwich but if you do, let me know and I could come and meet you for half an hour.

Hope little ZZ is fighting back as usual, how lovely to read that Val's son is doing so well, he has certainly been a fighter. I don't know about my friend's daughter as he has moved abroad and we don't hear from him now (he lives in the Philippines I think) but I am sure she will be battling on. I hope ZZ can be treated as new medicines and ideas happen and can do well and amaze everyone.

Lizx

Liz, I am so cross, I wanted to contact you when I was in Attleborough but had not brought you details with me!
I will be going there again roundabout the end of Februaty so please put that on you calendar and will you send me your telephone number! We get free calls to the UK.

Take care

Bridget in Spain, where it has rained nearly all day! :-)

Hello Bridget .
(((((Hugs)))))) ZZ ,Special thoughts coming your way God Bless Barbra xx

Dozy me, Bridget, I hadn't realised when you said you were coming here that it was September you posted that remark, it was the day before I returned from Corfu.

I think you have my number now so we will have a chat soon perhaps or you can let me know when you are visiting again. Have put your name on my calender but haven't one for next year just yet so it's at the end of the old one ready to be transferred.

Hope ZZ is doing well

Lizxx

I am very sorry to post this at news but ZZ has been back in hospital for three days and is very poorly. She has a rash covering her from head to toes and also a very high temperature.
Please , at this very busy time remember her in you thoughts and prayers.

Thank you.

PS. I hope that you all enjoy New Year Celebrations

Bless her, she does have some rough times. I do so hope she can beat this latest problem and recover OK. Thinking of her and all the family.

Poor little lass has had so many struggles, but has managed to battle through them.
Positive thoughts and prayers as she faces this latest hurdle and thoughts for all the family as they wait for better news.

Gwyn

Bridget, hope the little fighter can battle on, will be thinking lots of positive thoughts for her and hope something can be done to help her through this latest trouble. Her family must be exhausted and I am sure you are just as worried.

Let me know if you are still coming this way

take care and best wishes for a better year in 2012 with good news soon of little ZZ

Lizx

Bridget, Wishing little ZZ well. She is so brave. I pray she gets over this quickly and she stays well.
xx

I spoke to ZZ grandmother, my sister, this morning. Yesterday afternoon ZZs parents were told that they could take her home as the results of the tests, bar one which had not been received, showed promise for a recovery.as you can imagine the family where over joyed.

Two hours after taking her home they received a phone call saying bring ZZ back immediately, due to new results!! So back to the hostpital they all went. ZZ is now critically I'll. Her immediate family are with her in a special suite and no other family or friends can visit........ The cause of her latest problems are not yet finally agreed, she is drinking but not eating, her big sister is being very kind, her parents are simply waiting to see what happens next.

We are trying to be positive, please remember ZZ with positive thoughts, surely we will not see one child pass away and then have to welcome my youngest sons, child in mid February.
Bridget

Bridget, what an awful situation for your family especially little ZZ's parents and sister, to have their hopes raised and then dashed so quickly.

I hope this little girl can fight back again but if it is all too much for her, I hope you can find strength from the time you have had with her.

My thoughts will be with you all

Lizxx