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Today is the start of MS Awareness week

ProfilePosted byOptionsPost Date

maggiewinchester

maggiewinchester Report 29 Apr 2013 08:50

This year, they're celebrating MS nurses


:-D

http://www.mstrust.org.uk/msawareness/

Cynthia

Cynthia Report 29 Apr 2013 09:13

Thank you for that Maggie. I didn't know that they now had MS nurses - that's brilliant!!

My mum had MS and she lived with us for 15 years before she went into a nursing home for a further 10 years. She was an inspirational woman who lived to be 87 after starting with MS when she was 32.


My life then moved on to caring for family with Autism and Parkinsons......... :-S :-)

maggiewinchester

maggiewinchester Report 29 Apr 2013 09:42

One of my nephews has MS. He was first diagnosed at 22,whilst at University.
He was lucky, he met a girl there, who was trialling a new drug, and encouraged him to put himself forward. He did. That drug was Beta-Intrferon.
It's no longer available on the NHS, unless the patient was already taking it. For him, it's been amazing.
He's now about 39, has a high-powered job since leaving Uni, and is engaged to a lovely girl.

Kuros

Kuros Report 29 Apr 2013 10:34

I'm so glad Beta-Interferon worked for your nephew. My sister tried this and for her it was no good at all so her consultant stopped it. It's so expensive that if it isn't working it makes sense to do this. The MS nurses are wonderful and my sister has a great deal of help from them. They come if she needs anything and call in at other times too to see if she's managing all right. She'd be lost without t

maggiewinchester

maggiewinchester Report 29 Apr 2013 10:48

It's a shame it didn't work for your sister, Annie. More research is obviously needed for drugs.