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LOVELY BUT TRAGIC. good news update.

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ProfilePosted byOptionsPost Date

martynsue

martynsue Report 16 May 2013 17:32

my brother has a degenerative brain condition called cerrabellum,he also has short term memory loss he is only 56yrs old.
as I am his carer I am with him quite a bit,today he was asking me if I remember when we were children and our grandmother used to work in a soup kitchen,it was open during the day,mum would take us in to see her and she would give us soup in a cup and a finger roll.
it alway's tasted wonderful,he keep's bringing up all the thing's we did as children,plus the naughty thing's also.
it is lovely to re-live these memories but also very tragic to know he cannot remember what he did 30 mins ago.

you just never know what is around the corner.

enjoy everyday life is to short to miserable.

trafiklitedol

trafiklitedol Report 16 May 2013 17:41

Sorry to hear of your brother's conditions and so young.

My husband suffers from short term memory loss ( a brain haemorrhage in 1996)
He often goes back to his childhood but as I didn't know him then it is very difficult to share these times with him.
The very sad thing is he doesn't remember very much of our daughters early life.

As you say enjoy every day because you don't know what life is going to throw at you.

TheLeithLassie

TheLeithLassie Report 16 May 2013 17:47

Martyn, so sorry to read of your brother. It is good that he can remember the lovely childhood you so obviously had. I remember the last time I saw my mother, she spoke about when she was young. Looking back now, I'm glad she remembered her carefree years.

AnnCardiff

AnnCardiff Report 16 May 2013 18:59

as you say, live for today, no one knows what tomorrow will bring and the nice thing is he seems to be happy in spite of his obvious problems - I hope you are able to enjoy many lovely memories with him <3 <3

DIZZI

DIZZI Report 16 May 2013 19:32

HES SO LUCKY TO HAVE A CARING SISTER
AND YOU TO HAVE HIM

martynsue

martynsue Report 16 May 2013 19:46

it is really strange,he can reel off his national insurance number & date of birth,as he moved after his illness started he cannot tell you were he live's, when we go out in the car to the doctor's or hospital he say's the same thing every time,i haven't got a clue where I am and there are some very nice houses round here,

his best mate died 2 week's ago,he came down to see my brother 3 week's before his death,3 day's ago my brother said I wish I had gone to see him before he died,when I explained his friend had come to see him and stayed with him for the weekend he went very quiet and after a few mins he said I never knew that.
he looked bewildered.

~`*`Jude`*`~

~`*`Jude`*`~ Report 16 May 2013 19:49

Hello Martyn
So sorry to read about your brother, he is young to have this, how long has he had it?

My sister has short term memory problems, we've been told she has a personality disorder which effects the memory and also causes her to manipulate people, she could have had this since childhood or her teens.....but her husband died 3 yrs ago so this could effect her too, as she's now very lonely.
Its all very strange because she's had 2 memory tests and they are both high scoring, 87 and 95!!! also a scan has revealed nothing!
This has become very difficult to deal with, l don't just me but for her and the rest of the family.
Its so strange how all these memory disorders can be so different
You are so right about enjoying every day, because you don't know whats around the next corner:((((
You are obviously close to your brother...take care both of you:)

jude x

martynsue

martynsue Report 16 May 2013 19:56

my brother is down to shrinkage of the small brain (cerebellum),it affect's balance ,memory,he also has nerve damage with no feeling in the end's of his finger's,his wit is still very sharpe as is his sense of humour,he has a 3yr old springer whom he love's dearly but he cannot remember her as a puppy.
his condition started about 4yrs ago.

Mersey

Mersey Report 16 May 2013 20:50

I hope you can share lots more memories with him .......a brother and sister with a bond of love and care is do be admired <3

martynsue

martynsue Report 19 Jun 2013 13:39

yesterday was my brother's 57th birthday,ahh what to get him,

I sent for some printed family tree to fill in,

I just put in the parent's grandparent's and so on,i only put date's of birth and death's ,I also framed it and framed a copy of the family coat of arms,
well he sat for hour's looking at these,going over all the detail's,i have not seen him take a interest in anything for quite a long time,
as he has severe short term memory loss he keep's looking at them,now I will wait as he will start asking question's about family member's and were they came from.

I do not think I could have got him a better present,it only cost the price of the frames and he will have something to stimulate his brain.

I am so pleased he like it,

~`*`Jude`*`~

~`*`Jude`*`~ Report 19 Jun 2013 15:16

Hello Martyn....what a brilliant idea for your brother, so pleased he's enjoying it. Hope you have lots of info for him when he starts to ask questions:)

You're doing a brilliant job:)

Take care
jude

AnnCardiff

AnnCardiff Report 19 Jun 2013 15:28

good choice there - he's obviously very interested in it

carry on with the good work, you are a gem

Ann XXX

Mersey

Mersey Report 19 Jun 2013 15:32

You certainly are doing a good job :-) :-) <3

martynsue

martynsue Report 19 Jun 2013 16:05

it just goes to show it is not how much you spend, but how much thought you put into it.

KittytheLearnerCook

KittytheLearnerCook Report 19 Jun 2013 16:33

Well done Martyn, a perfect gift for him :-)

Another good on that helps stimulate memories are songs and photos from your childhood.

Mum used to love them, I photocopied pictures and photos and wrote the names of the places, people and pets underneath to help her remember who was who etc.

<3

Mauatthecoast

Mauatthecoast Report 19 Jun 2013 18:55

Well done Martyn and belated birthday wishes to your brother.

What a great idea for his present. I did something similar for my Dad,anything that stimulates memories is a good thing.

Mau XX

Purple **^*Sparkly*^** Diamond

Purple **^*Sparkly*^** Diamond Report 20 Jun 2013 07:09

Well done for thinking of such a great gift for your brother's birthday. I am glad he is enjoying looking at the details, it will stir many more memories I expect and give him lots of pleasure.

Keep up the good work, you are so lucky to have a close bond with your brother, long may it continue.

Lizx

martynsue

martynsue Report 11 Jul 2013 12:12

oh dear,
my brother has to go and see the vascular surgeon today,
at the end of his foot which he had his toes amutated he has got a ulcer.
he is in so much pain,with his on going medical problem's he is finding it difficult to understand what is going on.
every 30mins or so he keep's telling me his foot is really hurting,i reassure him with detail's of the ulcer,he say's ok then when he has sat for a while he say's again my foot is very painful.
not sure what can be done for him but time will tell.

AnnCardiff

AnnCardiff Report 11 Jul 2013 12:36

let's hope they sort out some effective pain relief for him <3

AnninGlos

AnninGlos Report 11 Jul 2013 12:43

Sue, your poor brother, how confusing for him, and no doubt frustrating for you, it must take patience. I hope they can sort out some good pain relief for him, he can do without the pain on top of everything else. <3