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New great granddaughter.big decision.

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ProfilePosted byOptionsPost Date

kandj

kandj Report 21 Sep 2013 23:17

Sending positive thoughts and prayers for baby Katie and also for Linda's granddaughter too, at such a worry time for both families.

Elizabethofseasons

Elizabethofseasons Report 22 Sep 2013 00:17

Dear All

Hello


Just before signing off PC, I wanted to add these two links:

-----------------------------------------------------------------------------------------

www.bliss.org.uk.


Bliss Family Support Helpline on 0500 618140

The Helpline is available Monday to Friday between 9am and 9pm.

ALL calls are confidential.

------------------------------------------------------------------------------------------------------------

The Bliss Family Support Helpline is a UK-wide service that offers advice
and support to families and friends of anyone with a baby who is in,
or has been in, neonatal care.


We also offer advice and information to professionals working with families.


Our team of qualified advisors can provide you with support and advice
as well as referring you to our other services, many of them free of charge.


The Helpline is free to call from landlines.

-----------------------------------------------------------------------------------------------


Also, this link:

provides a list of support groups for almost every situation where help is needed.


http://www.netdoctor.co.uk/childrenshealth/support_groups.shtml


----------------------------------------------------------------------------------------------------


Hope this helps.

Take gentle care
Elizabeth, EOS
xx

Sylvia

Sylvia Report 22 Sep 2013 22:47

thinking of Little katie and also Lindas granddaughter and hoping for good news.

Get well little girls

<3

Brenda from Wales

Brenda from Wales Report 22 Sep 2013 23:21

Well,our little Katie is still struggling.
They tried her off the ventilator again and on Cpap.she managed for a while but it didnt last.She may be moved to another hospital with a chest specialist.
They are finding it puzzling that she's not responding.
Feel so sorry for grandson and partner trying to cope.
Hope Linda's granddaughter is improving.

SueMaid

SueMaid Report 22 Sep 2013 23:24

A very difficult time for you all Brenda - I do hope things improve soon <3

kandj

kandj Report 22 Sep 2013 23:32

Poor little baby Katie, and what a worrying time for all the family. Let's hope and pray if baby is moved that she will improve with new treatment.

Ongoing thoughts and prayers for Linda's granddaughter too.

Sylvia

Sylvia Report 22 Sep 2013 23:33

What a terrible time you are all going through Brenda.
Praying things change and Katie is soon sorted out bless her. <3

Fiona aka Ruby

Fiona aka Ruby Report 23 Sep 2013 01:42

My thoughts and prayers are with the babies, you, and all your family.

DIZZI

DIZZI Report 23 Sep 2013 06:07

THESE BABIES ARE BORN FIGHTERS,
MY LOVE TO ALL BABIES AND FAMILIES XXXXX

Sylvia

Sylvia Report 23 Sep 2013 22:40

Wondering how little Katie is doing.
Also Lindas granddaughter.

Get well soon little ones
<3 <3

Sylvia

Brenda from Wales

Brenda from Wales Report 23 Sep 2013 23:03

Latest tonight is that Katie is being transferred once again.this time to the big city brand new children's hospital as she needs lots more tests to see why she's not responding to the treatment.

She can't cope without the ventilator and last night she had a sort of fit.
She is taking milk and seems strong enough to keep trying to pull out her tubes.
She is now 17 days old and not classed as a newborn.

We can't stop thinking of her and willing her to improve.
Hope to hear that Linda's granddaughter is getting better.

LindainHerriotCountry

LindainHerriotCountry Report 23 Sep 2013 23:16

She is going for an echo heart scan tomorrow as her heart is on the wrong side and a mirror image of what it should be. Her feeding is no different, she still has to be fed totally through the tube. She now has high calorie milk formula which is only on prescription to mix with her mums expressed milk,as they want her to put more weight on.
Her tube came out today so they had to go to the hospital to get a new one put in. while it was out, they tried bottle feeding, but she just screamed. She has such bad acid reflux that she equates feeding with pain

I hope that the specialist children's hospital will be able to help Katie

Diamonds-R-A-Girls-Best-Friend

Diamonds-R-A-Girls-Best-Friend Report 23 Sep 2013 23:21

Thinking of both babies and wishing them well <3

Suzanne

Suzanne Report 23 Sep 2013 23:23

keep fighting Katie,you will be ok soon

my Katie now 23 was always a fighter,shes still the same,your day will come darling,once a fighter,always a fighter.x <3

Elizabethofseasons

Elizabethofseasons Report 23 Sep 2013 23:25

Dear Brenda and Linda

Hello


Thinking of the little ones and their families.

My caring and warm thoughts and also Brenda for your husband,
whose birthday it would have been.


Sincere wishes
Elizabeth, EOS
xx

kandj

kandj Report 24 Sep 2013 00:15

Sending positive thoughts and prayers for both little babies and both families.

What a worrying time it is for everyone right now. I just keep thinking that the little girls are in the best place and will surely get the very best of care.

supercrutch

supercrutch Report 24 Sep 2013 00:23

Thinking of the little ones and their families.

Sue x

JustJean

JustJean Report 24 Sep 2013 06:57

Continuing to pray for both babies and hope solutions will be swift in coming , thinking also of both families , love and hugs to you Brenda...

love Jean and Jeff xx

Purple **^*Sparkly*^** Diamond

Purple **^*Sparkly*^** Diamond Report 24 Sep 2013 06:58

I hope both little ones will get stronger each day and their problems will be sorted out soon. It's so hard when you can't take your baby home to be with the family, and have to watch them go through so much treatment and pulling about.

Positive thoughts to both babies and their families

Lizxx

Sallie

Sallie Report 24 Sep 2013 16:14

Hope that both babies problems will be sorted very soon. Sending positive thoughts to both babies and their families. Thinking of you all.

Sallie.xx