General Chat

Many thanks for your suggestions and pm's.

Found a discussion board on the net this morning. Have only had a quick skim through it because I am expecting my granddaughter in about 30 minutes. Loads of recommendations on there including rubbing banana skins on the patches, as mentioned in one of your replies.

Apparently drinking horse milk is good as well. lol. Don't fancy that one much!

Libby not a good way to get rid really but my Dads got less also as the cancer grew,
What is psoriasis has to be the main question
How do I (and I underlinethe I) treat it is the second.

I have no answer ( but yes moving to a sunny climate helped ). You may google it and be given lots of answers and so called cures. Personally I would go for the tried and tested ones here.

Hope you find your answer

Hi I also have psoriasis I inherited it from both of my parents behind my knees is the worst its unbarelable but you could look at me n know I have it right away its on my face most of my body and in my scalp which is very unpleasant it doesnt bother me its part of me but when they say its not itchy it really is lol I use e-45 mainly the stuff from the doctors don't touch it x

Isn't there something that Lush do that helps this condition? I have recently had odd flareups of rough dry flaky skin on my face, as well as the start of rosacea, but I have been prescribed some Nizoral cream for my rough patches and the same stuff in a shampoo for my hair as my scalp sometimes gets very flaky. I know mine is down to stress tho.

I just googled Lush and psoriasis and came up with several reviews that show favourable results about the product called Dream Cream.
Might be worth you reading about it and trying some, if any of you have this unpleasant condition.

Lizx

Libby, you just inspired me, on a completely unrelated note. Annie Walker was way before my time - I started watching Corrie in 1991, and managed to catch oldies back to about 1989 in rerun on a cable channel. I came in the same week that Steve and Andy MacDonald did.

So I've just gone to youtube -- and lo and behold, yes, there are little clips of oldies. So now when will I get any work done?? I'll start with "Annie Walker falls down the stairs 1975" ...

Good luck with your C&Ping. ;)

LIBBY. I HAVE NEVER SUFFERED FROM PSORIASIS, BUT HAD A FRIEND WHO DID. SHE ALWAYS WORE BLACK TIGHTS, EVEN IN THE SUMMER TIME.
IT FLARED UP WHEN SHE DRANK TO MUCH ALCOHOL, AND WHEN SHE WAS STRESSED OUT.

MY DAUGHTER HAS SUFFERED FROM ECZEMA SINCE A BABY, AND ALCOHOL AND STRESS MAKES HERS FLARE UP, SO SHE HAS TO WATCH WHAT SHE'S DOING.

SHE FINDS NATURAL SUNLIGHT, AND THE VERY OCCASIONAL SHORT STINT ON A SUNBED HELPS.
HAVE YOU ASKED YOUR GP FOR DIPROBASE??
IT COMES IN A SMALL TUBE TO TRY, AND IF IT WORKS, IT IS AVAILABLE IN A PUMP ACTION CONTAINER.
IT IS FOR YOU IN THE SHOWER/BATH, AND IS A MOISTURISER.
IT IS ALSO VERY GOOD FOR ANYONE WHO HAS SEVERE DRY SKIN.

SHE GETS IT FROM HER GP. HER 7YR OLD SON HAS HAD IT SINCE HE WAS A BABY ALSO.

Janey

That sounds interesting. Sorry but I am an absolute numpty when it comes to C&p, have been shown loads of times how to do it but somehow I can not "get my head around it", seem to suffer "brain freeze". Wil have to get my 15 year old to do it, sorry. Look forward to reading it.

I know it is genetic, my oldest son,nephew(s), dad, and paternal grandfather suffered from it. None of them had an OH like mine. lol. Apart from my granddad who had a wife with a mind of her own.. lol. Unfortunately she became like "Annie Walker" from Coronation Street and was known as "The Duchess" and had a very selective memory..

My Dad had a really bad patch om his leg, over 1/4" deep and raw, plus a bad scalp but it all went when he got cancer, as if his body had enough to deal with. Same happened to me when my first husband had an RTA, no sign after 2 weeks

for later

Move to Spain! I like that suggestion best so far. ;)

Sunlight is one of the therapies used -- or UV light in our northern climes.

I didn't mean smite the parent *down*! Just a good smack.

I'm just glad I got my dad's psoriasis, and not my mother's side's skin cancers.

Janey I found out it was genetic a few years ago, smite the parent don't think so and I never told him before his death it was genetic.

I found the tar based treatments disagree with me, and since I've moved to Spain the problem is less.
It does still flair up in times of stress but so far I have not treated it with anything that can't be bought over a counter here.

Will be interested at what people use.

There is some interesting stuff out there that it doesn't seem is being considered for you, Libby.

http://www.wptv.com/content/health/story/
New-guidelines-for-the-management-of-psoriasis/4rCDKUp96UWSLOEUxVs4mQ.cspx

SCHAUMBURG, IL -- Based on an extensive review of scientific literature on psoriasis and the opinion of recognized psoriasis experts, the American Academy of Dermatology (Academy) has released new guidelines of care for the management and treatment of psoriasis with traditional systemic therapies. Recommendations, efficacy and safety for the use of the three U.S. Food & Drug Administration (FDA) approved and most commonly used traditional systemic agents – methotrexate, cyclosporine and acitretin – were outlined.

“While in recent years biologics have changed the treatment of psoriasis, traditional systemic therapies – which are easily administered orally and less expensive than biologics – continue to play an important role in treating psoriasis,” said dermatologist David M. Pariser, MD, FAAD, president of the Academy. “The Academy’s new evidence-based guidelines are intended as a guide for physicians so the best treatment can be determined for each individual patient. The guideline also discussed any potential side effects or risk factors that need to be evaluated prior to treatment.”


Also:

http://www.aad.org/public/publications/pamphlets/common_psoriasis.html



Those are long articles and you might want to have a read, and discuss some of those options with your Dr.

If it might make you feel any better, go and smite one of your parents. The condition is genetic.

I am so lucky that mine only became noticeable when I was approaching middle age, but unfortunately as red patches on my forehead and beside my nose. What I realized later was that the horrible ugliness of my elbows, particularly the left one!, is also psoriasis.

I started using topical cortisone a few years ago and use it as needed, which isn't often on my face these days; it seems to have gone away. Before that I used the tar stuff, which didn't really seem to have any effect, other than giving me a horrible blotchy sunburn on my face through the car windshield one weekend when I drove for several hours to meet a potential amour, and arrived looking like bozo the clown. I didn't read the instructions. Do not expose treated skin to sun.

You don't want to hear my woes. But when I figured out what I had and that it was hereditary, I did demand to know which parental unit was responsible. We realized that the reason my dad was the only person anybody had ever met with dandruff in his eyebrows was ...


http://www.insidermedicine.com/archives
/New_Treatment_for_Psoriasis_Shows_Promise_2531.aspx

You could ask your doctor about getting in on any trials that are going, or whether this treatment is available. The article refers to serious side effects, but doesn't say what they are. In some cases, they might be worth the risk.


http://www.psoriasis.org/NetCommunity/Page.aspx?pid=798

Could be worth taking a look.

Hi
Hope you don't mind me telling you about my experience.
Many years ago i suffered very badly from eczema and had done so for a number of years. I had all sorts of creams from the hospital , But it never seemed to get any better.
One day i was talking to my mothers friend who didn't know of my eczema.
She told me about her sister who had had Psoriasis since she was a child and now in her late fifties it had virtualy disappeared.
She had been advised to seek the help of a Homoeopathic specialist and after a couple of years it had virtualy gone .
I couldn't believe this until i spoke to the lady concerned.
I asked my doctor who was reluctant to send me to see a Homoeopathic specialist. I eventually attended a local clinic which i visited for about two years. I am not completely free from eczema i only now have a large patch on one of my knees .Yes it is sore some time but it goes after a few days . I no longer take any medication for this only sudocream thats all
Some people don't believe in Homoeopathic medicines. Thay say its mind over matter. Well it worked for me.
Sorry i have gone on a bit.

Regards
KR

I swear by evening primrose oil, instead of taking the capsules by mouth I pop them and rub the oil in (a little goes a long way) It works for me. Good luck

My son has this ...and the arthritis that goes with it .....hes lost his lifes long ambition over this in 4 weeks ....

We have been to a homeopath she says use Elvive shampoo on it the one with selenium s in it ALL over your body and canistan then reduce the sugar in your diet ......

GUESS what its working...........

JAX ....buy the BEST you can get from a good health food shop not B**ts or H*****d and B****t

I didnt find the dovonex ointment very good but the scalp solution helps me though it does sting quite a bit putting it on.

My dermatologist also gets me taking cod liver oil capsuals not sure if they are doing any good but take them anyway cos they cant be making it worse lol

The silkis is very good though and can use a full small tube daily if need be cos its so gentle.

Thanks Jax

The Silkis sounds good because of the liquid parafin. Had to use liquied parafin as part of the hospital regime, to remove the Dythronol paste.

Have tried Dovonex with no success, borrowed some off my son.

Hi Libby

I too have psoriasis and mid flare up at the mo.

Im using silkis ointment which is liquid parafin based and very gentle, dovonex scalp solution (there is also an ointment also liquid parafin based but I didnt find it as good as the silkis) and in between moisturing plenty with e45 and it seems to be helping as about a month ago it was cracked and weeping but alot better now with just the redness left.

Hope you find something that suits you soon as I know how awful it feels

Edited to add steroid treatments should not be used on psoriasis unless for very short term as it can have a rebound effect and make the psoriasis come back 10 times worse once stopped, I found this out the hard way when my dermatologist hit the roof about me being prescribed it.

I have suffered with psoriasis since my teens and have been hospitalised twice for 4 weeks at a time. It has settled down for the last 14 years with just a few patches, mainly on my elbows and legs. The leg patches drive me mad, especially when I need to defuzz. lol

In the last two weeks though it has flared up again. Scalp, elbows, legs and underarms ( even worse for the defuzz).

Does anyone know if there is anything new on the market I could ask my GP for? Can't use any steroid creams because I was prescribed them for years and I know my GP wont give me any, he was not impressed when he found that my previous GP had prescribed them for over 15 years.

Have tried Ulatum (sp?) in the bath, E45 cream and Aqeous (even more sp?) cream without success.

My stress level is quite high but has been for a while because OH has been unemployed since the end of last Summer plus I have a hormonal daughter. lol