General Chat

Julie its unusual for the hospital to sign her off.......they "often" say call if you have any problems ...thats what my son does ...and they just give him a hospital appointmant for the "next" tuesday!!


May be worth a early call to the hospital before you see the GP.....but see the GP aswel

good luck



EDIT.....try a "good" cod liver oil....but it must be good from a good health food store not H&B

Thanks Catie

Kemp..trust me she was sign off as i have a copy of the letter, but the doctor did say if we have any concerns give them a call that why i have an appointment for Monday at Gt Ormond St Hospital

She was sign off as it was 18 months after have her last steroid injection & she was showing no signs if it

Both my children have taken cod liver oil nearly all their life

Oh yes Julie ....often the letter is the last of it ...sorry that your daughter is having another flair up .......


My son to has Arthritis which only 6% of people in the world get ...his is VERY early onset and now he is beening sent!!! around the hospitals to be "looked at" coz hes so young for this kind of arthritis they have told him he will need one knee and one hip replaced before hes 25!!!!

What a horrible medicial problem it is .....

Awwww Poor T I have only just seen this Julie, I do hope she is sorted soon will they give her injections?

My sister has a form of arthritis in her ribs, its called Tirzettes or something she has to have injections . xx

((((((hugs)))))))

Big ((( hugs))) for T.
I hope everything goes well for her.

Deb

Good luck for tomorrow.
x x

Hi Julie
Big hugs for your daughter. My son was diagnoised aged 4 with JA like you we went to many hospitals before being believed. Eventually I contacted Arthritis Care to see if they could help and they were Fantastic - put in touch with Wexham Park Hospital in Berks where the country's leading specialist was (but this was 20 years ago) but do contact Arthritis Care as they are a great support to children and parents.
Son had it worse in his knees and he found wearing thermals during cold spells helped and has recently bought some more due to this weather.
Does she stay in during playtimes at school during this type of weather? School may be difficult over this but persevere saying it is due to health problems.
One other thing we were advised on was for him to ride his bike as much as possible as it took pressure off his joints. Also the anti inflammatory drugs we were prescribed I got in liquid form as it was faster acting although tasted disgusting.
Do keep us posted on her progress
Barbara

Julie, sending you all (but especially T.) a hug. Hope she is feeling better soon.
Love Viv
xxx

Thanks Everyone

She has to have 2 steroid injections, 1 in the front & 1 at the side of her Ankle.....When it will be i don't know at they only do this procedure twice a month but she has 1st available slot


Barbara
We've been pretty lucky. she was diagnosed but before her 3rd birthday & within a year we were at GOSH for the steroids.
She continues doing everything that she would normally do & those that know her would tell you they wouldn't believe that anything was wrong.
Her school has been fantastic & if she has said she is in to much pain to do PE then they have let her off from doing it
.


Many thanks everyone & for share your experiences too

Oh Julie Thats really good news just a shame they couldnt do it there and then , Lets hope her wait isnt to long.

This condition is awaful and I really dont think people understand what these children and people go through in just their every day life

Take Care Julies Daughter

Hi Kemp

The consultant say if it had have only been 1 injection it could have been, but cos of 1 need to go in at a funny angle she need to have a scan 1st.

You are right as in we don't understand, & what i found hard was not having someone to talk to when she 1st got it.

Now all i need to do is get her to take the tablets without crunching them lol

TC Julie

Sending love to your daughter Julie and hope the pain easies soon.

I have arthritis and know what pain she is going though.

Val xxx

Hi Val

Thank you, i think it's only those that have it can understand the pain

Much Love xx

Hi Julie, I've only just seen this about T, i haven't been on FB much of late, and when i have i haven't been paying much attention, sorry.

I hope she is feeling brighter and that the steriods will do the job for her again. Hopefully she won't need too many.

Hugs to both of you

xx

aw hope shes feelign better soon and thy hurry the scan along xxx

Hi Yvette

No worries :-)).....She has to have 2 injections & this should be a laugh as they are not going to knock her out this time but use laughing gas lol


Stray.....they'll do the scan when they'll do the injections, the reason they do the scan is cos 1 injection needs to go into an awkward area, she hates having to scan cos they need to bend her foot about

xx

Just in case anyone wanted to know

Got an appointment at GOSH for 4th March at 7:30

In the morning Lynda......& at least i don't have to worry too much about starving her

aw gud look to your daughter hun xxx