General Chat

My Uncle died from MND

We are trying to raise funds the set up a laboratory in Sheffield through:
http://johngreenwoodtrust.com/index.html

Why:

1- to raise money and awareness with a view to aiding research into this dreadful disease.

2- to raise £150K so that we can acquire a laboratory at the Institute in John's name. We think this would be the perfect tribute to him.…….

What is MND?

Motor Neurone Disease is a fatal condition for which there is no treatment and
no cure. In the UK 35 people die from MND every week, and every week 35 people
are diagnosed with MND. The average sufferer will live two years, only 10% will survive more than five years. The muscles waste away and the patients die from weakness and paralysis of their breathing muscles. Many doctors regard this condition as the worst disease in medicine.

MND was described by Charcot in 1869. Since then very little has been done. Figures show that between 1999 and 2004 6000 people died from MND, 4200 from HIV/AIDS and 92 from vCJD. During this time £33million was spent into
vCJD, £45 million on HIV/AIDS and £8 million on MND.

We hope to raise £150 000 to forfill our dream

THANKs FOR READING THIS .... if you know anyone that would help - can you pass it on. It doesn't have to be much but every penny would help. There is very little funding for research in to MND.

Well done for doing this .I hope you reach your goal.My Dad died from this awful disease in 1987.Back then there was very little help for sufferers and their families.Only a few years ago many people still hadn't heard of it,but the more it is talked about the better.More funding is long overdue to help find a cure for this Fatal Disease.

I seem to remember that the actor David Niven died from this disease, and until then, no-one had heard of it.
Julia in Derbyshire

Thank you for taking the time to read this. I'm sorry that you also have a family member affected. Now you've read the figures on funding you can see why it is being done!

I just want to play my part in making a difference for others.

I would be interested to hear the problems you have faced and the lack of provisions and support avaliable ....as a mnd sufferer or as a cater.