General Chat

Definition: Almost half of the population of people with Parkinson's disease experience a sudden inability to move at all known as ‘freezing.’ It is a scary experience for most of those who experience it, particularly when it involves most of the body. But that is rare.
Most often freezing affects the legs during walking. This freezing of the legs may include hesitation when beginning to walk or a sudden inability to move the feet during specific situations, such as when you see a long hallway or crossing busy streets, or approaching a destination that is within site.

SHE NEVER CAME

I CONTACTED MY SUPORT NURSE SHES GOING TO SEE WHY.
THERE ARE TWO NURSES ONE IM AFRAID I TOOK A DISLIKE TO AS SSHE SAID
IF SHE WALKES UP AND DOWN STAIRS WITH ME IT WILL GIVE ME CONFIDENCE

AND I WONT FALL...ITS NOT CONFIDENCE ITS PARKINSONS, AND I FREEZE IF I FREEZE ON THE STAIRS I FALL.HAVE DONE A FEW TIMES

BUT SHE CANNOT UNDERSTAND IT AND I GOT SO FRUSTRATED,
SUPORT NURSE SAID SHES A GOOD PHYSIO BUT LACKS UNDERSTANDING,
BUT OTHER YOUNGER NURSE WHO DIDNT TURN UP
KNOWS ABOUT PD AND IS MORE APPROCHABLE,

TO BE HONEST YOU HAVE TO PUT TRUST IN THINGS BUT THE FIRST NURSE I FEEL NO TRUST
OR HELP,AND THATS NOT GOOD

The Nurse should have phoned you to let you know an est time of arrival "ETA"
The Nurse should have informed you if she could not make it.
The Nurse should have made another appointment with you as soon as possible.

Phone her today & find out Dizz & dont let her flob you off with some lame text book reply.

hi dizzi.
im a nurse,and if im running late(for whatever reason)i will always phone my next patient to let them know when to expect me.was your nurse due to perform an important task?or was it something that could have waited(maybe she had someone that needed her more and therefor it took longer than expected?)did she manage to get to you after all?.x :-)

Dizzi, did the nurse arrive or did anyone eventually let you know what was happening. As far as I am aware this nurse are usually quite reasonable at informing people if they are going to be late.

Bridget

Hi Dizzi,

Did anyone turn up to see you in the end?

Teresa x

THE NURSE FROM THE HOSPITAL WAS DUE HERE
AT TEN O'CLOCK.NOW TWO HOUR FIFTEEN MINS
LATE,
AT A GUESS SHE'S NOT COMING.

NICE OF THEM TO CONTACT ME!!
WELL IT WOULD HAVE BEEN,