General Chat

Sylvia, I can't imagine with any accuracy, what your situation is, but is there any possibility of introducing a 3rd party/parties that may be able to introduce some form of 'building blocks' to help you?
I'm thinking along the lines of 'Recognition - Familiarity - Trust', that may alleviate at least some of your concerns for the future? :-)

I always told Daff that she should write a book.

I had a feeling it could be that or the other obvious one <3

You should still write that book!

Along with my husband, I care for our 25 year old daughter who has special needs and a rare syndrome. also some autism. It was difficult for my husband when I was ill , but she is such a lovely young lady and we are so proud of her. I do worry about the future. What if I am ill again. I have to shower or bath her, wash her hair etc. Also worry about what will happen to her when we get older.

Suzanne it must be so hard for you with your daughter having epilepsy, I feel for you.xx

Sue, not with that song ... I 'blub' :-( <3

OOOhh, sri, left out the link :-S :-S

http://www.youtube.com/watch?v=_bqdeUdeH9Y

MrDaff, this is the right arena cos many on here are caring for very poorly relatives and some feel isolated.

Peoople are afraid to let their guard down and admit they wanted to scream, cry and (in my case) could have cheerfully throttled my sister some days.

Luckily I had my own GP at the end of a telephone as well as my sister's GP for support.

If more people opened up and truly expressed their feelings it would help many to come to terms with how they are caring/did care for a loved one.

I told Daff I loved her everytime we spoke or I saw her, I just wanted her to know that no matter how much she had changed my feelings hadn't (if that makes sense).

All carers need to be able to offload to another person slightly detached from the family's agony and it's a case of whatever gets you through it as best you can.

You would make a great 'listening ear'. <3

Suzanne, although not directly involved with such care, Daff was - many years spent with children and adults with special needs, and also had a beautiful niece who had DS.
Through her I began to understand the difficulties families encountered when caring for those with all sorts of needs - even the thugs !!! One 9 yo, when she asked him what he wanted to be when he grew up told her "A burglar, miss .... but not your house 'cause we like you" !
When I asked why she continued in the work, despite a number of violent encounters, she simply said 'because they need someone they can trust'.
Says it all really - it's what your daughter is receiving, beyond the love... x

iVE cared for my daughter,with the help of hubby for 31yrs,she has really bad epilepsy and mild special needs, daughter works part time and has done for almost 15yrs,sh lives with us,but gets by with our help,its an on going thing,no one helps her except myself and hubby :-)

.....it can be a very difficult time for both of you. I didn't realise (naively !) this was on YT, but it was one that I played and sang (quitely..) to OH.

Hard to do, but actually gave me some additional strength when needed. It may do the same for you, if you are in that situation x.

This may not be the right arena, but I know there are a number of GR's out there who remember Daff well .... ignore the video :-)