General Chat

Michael <3 I think thats a great idea, what you are doing

Susan-nz as always <3

susan- nz thank you for your reply I am very sorry to hear of your loss and the of the booklet which was a very good thing I have talked to my family about what I want done except what I want don't with my ashes I did want to be scatterd at sea but now not sure as I gave my space in the crem to my younger brother when he passed on two years ago in feb. so iam thinking I will buy another plot and be there near him also so family can visit if they want too. the rest is sorted.xx

thank you Mersey. :-) :-)

Glad that your visit to the oncologist went well Michael and that you have decided to begin chemo tablet treatment.

That is a good idea to record your thoughts so that your son and family will have some very special memories which will be priceless and precious for them. Well done you !!

Sad to hear your news Michael. The tablet is not so intrusive and hopefully will give you more quality and quantity of life. Take care. <3

So sad and sorry to hear this Michael. I am pleased you are going to have the chemo tablets. What a brilliant thing to think of in recording things as they come to you for your son and family. I will be thinking of you. Try to keep your sense of humour which we can tell you have. Take care <3 <3

Nice one Michael, I suggested recording and already you are on to it, I think it will be a great way to leave your memoirs (and no one will be able to comment on your spelling lol). Your words will mean so much, telling the story in your own way rather than trying to write it down, proper like, will be much more personal and natural.

Good luck with the chemo.

Lizxx

Susan-nz,I am sorry about your poor Dad. That's just what happened to my late Dad, he kept going to the doc with 'chest infections' as the doc said, and it was only after two years of 'chest infections' that he was investigated further and found to have the dreaded illness, in August 1989. A smoker most of his adult life (and possibly before) he had paid the price. He only had a little treatment and that was to ease his throat so he could eat properly, that and a couple of weeks respite care in a hospice, kept him going a little longer but he left us near the end of January 1990, aged 79.

I am sure with the chemo Michael you will have more time with your family and will get those tales recorded.

It's good that you have the other details sorted out for the family, makes it better for them to know they will do right by you but hope it won't be for a good while yet.


Lizxx

Michael,

My Dad wanted half his ashes returned to the UK. The rest - he said "surprise me"... :-D :-D...

Personally, I like the idea of having somewhere to visit. ( The UK is a little far). I have a fear of being 'covered' in ash - standing down wind ;-).

Thanks Mersey and Purple.

well yesterday was a sad day for me I decided that due to my condition and becourse of safty I would give up my mobility car. as I did not want to cause any acciedents if I felt unwell while driving well they picked it up yesterday. so now I have to use taxi,s all the time. the car only had 496 miles on her from new who ever buys it has a bargin. end of 50 yrs of pleasure. :-( :-(

Aww Michael really feel for you. Chin up. xx

last bit of inderpendce gone driving lience next I exspect. :-(

That's a shame Michael but honourable of you to stop driving before an accident might occur. Pat on the back for you altho I know how hard it must have been to make the decision. Can you get help from DSS for costs of taxis to appointments etc? Might be worth asking, in fact why not contact someone like Marie Curie or MacMillan people and ask what help you can get. The things that are available are for people like yourself.

You are often in my thoughts,

Lizx

Hi Michael
Sorry to hear your news
Just wanted to tell you about a non invasive treatment we got for my dad
He was diagnosed with an aggressive mesothelioma in dec 2010
He was 82 and not offered any treatment
I happened to read an amazing article about something called paw paw cell reg and we decided to give it a go
Dad could not swallow the capsules do we devised a 2 prong plan to keep his weight on and attack the cancer
We made him a 500 ml milkshake every day out of a bottle of cream 100 mls of milk
Berries and icecream or chocolate and Icecream
We opened the capsules and mixed them in to his drink.
WELL much to the specialist surprise he fattened up and looked really healthy until feb 2012 when he got a tooth infection and developed heart failure
When he felt ready to just let things go we took away the drink and the pawpaw and I swear within a fortnight his whole chest wall was covered in visible tumours
You had to see it to believe it
Dad died in may 2012 having done so much better than anyone would have imagined and I really believe if not for the heart failure he would have hung in longer
Just look it up and see what you think you can get it online
Regards Tania

feeling a bit stressed to day I phone the doctors on Monday cos I need to get better pain relief was told next appointment date would be in 5 days. so aske for phone consultion which was to day told doctor I need to up pain relief as I have only been taking paracetamol 8 per day to takr the edge off pai also needed sleeping tablets as not sleeping at night only during the day which I don't wont to also need an inhaler which they know a bout he well you will have to come in to see me so I told him he,s as about as much use as a chocolate tea pot. and put the phone down. now I have to get hold of my lung spec nurse at hospital and get her to sort the t****r out lol don't like to bother her as I am not the only one she has to deal with. also I phoned insurance cop to activate terminal illness clause the were very good got the papers this morning which I had to sign so far so good I thought on it said the wanted ths details also some thenthing call roll number which I did under stand so phone bank all I got was press this one then press this you just cant speak to any one these days so off the wife tolddles on her scooter to bank to be told it was not n/a. still all sorted now sorry for the winge. :-) :-)

Michael..

So glad you have got most of the details sorted and so sorry you had to get rid of the car.

By the way that ain't a winge.it;s putting your thoughts down as you think of them.

Hugs,,, <3 <3 <3 <3 <3

it used to be the elder doctors under stood and were more caring not now it was a young locome doctors sent me for a scan thank god he did otherwise I would not have known.

Sorry you have had a bad day Michael, things will surely be sorted and you can get the treatment and help you need........ <3 <3 You are allowed to feel anyway you want to ...take care and chin up <3

Michael you should not have to wait to see any doctor in your situation. Tell the receptionist that you need to speak to , or see a doctor and that doctor should see you any time. Maybe I was lucky with being in a village . If ever I rang and was told there were no appointments, I told them my name and got one. Macmillan nurses will help you and as Liz said above, they may be able to help with a payment towards travelling costs. Do ask them what help is available to make things easier and less stressful for you. Take care. <3 <3

Michael - is your Lung Specialist Nurse also a McMillan Nurse? If not, ask to be referred to one. You might even be able to self-refer if you look up the local number and give them a ring.

From what our neighbours said, they were wonderful and were their first port of call when there were problems with Meds etc. In this day and age there is no reason for you to be in pain for the next five days!

They might also be able to help you access funds for essential transport as well as arrange medical equipment in the home if that is needed in the future.

They'll provide emotional support not only for yourself but also for your wife.

You have as much right as the next person, so don't put off asking for help when you need it. Come to think of it, as an interim measure, the specialist nurse would be able to talk to the hospital team and either liaise with your GP or email an approved prescription to your chosen chemist.