General Chat

if shes in a home she is in the best place, we had one lady who used to phone the police and tell them we'd kidnapped her - dementia people can have lucid moment inbetween confused moments

think this threads going well,

we all must remember that dementia people are still individuals not just a group of people with the same condition and they all have unique qualities

When I visited Mum in the home one day,she was sat in the lounge withe the other residents .I walked in and she called me over looking very scared and she shoved a paper serviette in my hand .On it she had written HELP they are trying to kill me.!She thought thestaff were poisoning her ,and was refusing to eat or take medication.She made one of the other residents taste her food first to make sure it was ok.
We had a phone in her bedroom,but had to have it removed (said it was broken) as she was calling me maybe 10 times asking when I was going to go and take her home.It became to upsetting for me to hear her so far away feeling scared all the the time,when there was absolutley nothing I could do.

meercat,

remember when people get elderly they do rely on family more, is she in a home?

Nice thread Bambino

My mum has had Alziemers for many years now and my favourite uncle has the Vascular type.(they are not blood related)

Its a terrible/cruel condition and its just awful to watch someone degenerate in this way.
Sometimes I feel like she has 'gone' but yet she hasnt. (hope that makes sense?)

Well must go as I am going to visit her now , she is in a care home. My dad was her 24/7 carer for years but is too ill to be at home. My dad misses her so badly but he has been/is an absolute star.

Luv Sue x

Meercat,takes things that Mum says with a pinch of salt ,as a lot of what she says will not be true,even if she comes across as being very plausible.I always found it hard to know what to believe.

Moving into a home can be daunting as elderly hav worked so hard for wot they have and then they move and have to get rid of a lot of it, try taking some of her bit ie pictures etc to make it more homely. Carers of today are trained to empower client to do as much as possible themselves so they maintain some sort of independence and aren't treated like children. its also hard for relatives as they may feel guilty at having to put relative in care but they don't need to feel guilty. its a hard process not only for the individual in care but also the relatives. keep a stiff upper lip

Thank You for this thread

I have a brother who is 57 years old. He has Dementia and also Motor Neurone Disease which makes it twice as bad. He is still mobile (Just) but is weakening by the day.
He has just had an operation to place a plug in his stomach to feed him as he was starving to death as he couldn't swallow anything. He was only 41 Kgs So now he can't take anything orally. They have just given him Botox injections in his neck to stop the Saliva as he can't swallow that either. Anything take orally would go straight to his lungs.
The Dementia side of things is getting really bad and although he still knows my sister and I he goes off in a little world of his own at times. He walks away from us and you can call his name six times and he doesn't respond. So we think it is getting close to the time he won't know us at all soon..
The Neurologist gave him 12 months to live back in April, My sister (Who has Power of Attorney) and I are his main support as he is divorced. We find it really hard coping with this and although we try to be as strong as possible when we are with him Each time we come out of the Home he is in we are so upset and it takes a couple of days to get over it. Then we are back to another visit so most of the time you are feeling down.
We feel so helpless as he is still young. Life just isn't fair.
Feel a little better being able to share this with others who have loved ones with this awful problem.
Thank you
Regards
Jackie

n

Ive had a really bad day at work today! One of our larger than life characters has suddenly given up the fight and is dying! He is such a big "strong" man who although has vascular dementia has a fantastic sense of humour still or did have up to last Wednesday! He has been diagnosed with pneumonia and a chest infection!

I have worked with people who have dementia for a few years now and you would think I could get used to people passing away but it gets me every time!!!

Bev

Sorry to hear you've had a bad day, you follow the same procedure but it doesn't get any easier

Jackie from oz

it is hard but if you feel like talking we're here

bambi x

nudge

Bev so sorry you've had a bad day. It must be the hardest part when patients/clients die.


Meercat we thought my Mum was doing things for attention at first because "events" started not long after her sister was diagnosed with alzheimers. My Aunty is in a home and we thought that was what Mum was after,getting to live in the same place. Sadly turns out it wasn't attention seeking. She had our attention all the the time anyway so it was odd to feel that way about her.

Jackie so sorry about your brother.

Montys Aunty had motor neurone and lived with it for about 25 yrs amazingly. She had a fall and broke her hip and thats what caused her death. So she was spared the horrid death that can come with MN.
Love to all
Tricia xx

Is it a fact that we can demonstrate in ourselves that an increase of vitimin B6 & B12 helps the brains blood flow improving memory

Hi David, Yes was one of the first things specialist prescribed for my Mum and folic acid.
Tricia x

David ,dad had vitamin B injections when he had MND .I saw no difference at all!.He had no problem with memory .This was 21 years ago.I hope things have changed now.

It would take a while to be absorbed by the body before being put to beneficial use, but I've heard it works

A high percentage of the intake is excreted anyway

Would we benefit taking B6 & B12 as a dietary supplement ?

Hi guys!

nudge