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New great granddaughter.big decision.

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ProfilePosted byOptionsPost Date

Sylvia

Sylvia Report 24 Sep 2013 21:55

Aww bless these two little girls and their families at such worrying times.
Praying that they are soon well and at home with their families.

Sylvia <3 <3

kandj

kandj Report 24 Sep 2013 22:32

Thinking of the two baby girls and both families. Healing prayers for babies and positive vibes for families.

BrendafromWales

BrendafromWales Report 25 Sep 2013 22:45

Katie has eventually been moved to the big city hospital and parents and little brother are housed in one of the suites there.
Apparently her other lung collapsed this morning.I do hope and pray they can help to find out what is wrong .
A top specialist will see her tomorrow.so we need all the thoughts and prayers we can get.
Thanks for listening....and hope Linda's granddaughter is improving as well.

LindainHerriotCountry

LindainHerriotCountry Report 25 Sep 2013 22:55

Oh dear, I am so sorry Brenda, I hope they will be able to find out what is wrong in the specialist unit

My granddaughter had a heart scan yesterday, lots of people came to look as having your heart on the wrong side and pointing the wrong way is so rare. Anyway, thankfully she has no major defects. She does have a murmur because she has a blood vessel between the Aorta and Pulmonary artery which shouldn't be there. All babies have one before they are born, but it closes off at birth, except hers is in a slightly different place. They didn't seem bothered about it and said they will just keep an eye on it.

The geneticists came along and ruled out another suspected syndrome as she didn't have the heart defect that usually goes with that one. In the meantime she is just-on three hourly feeds all through the tube, she is nine weeks old now, so it is very tiring for her parents

Gwyn in Kent

Gwyn in Kent Report 25 Sep 2013 23:05

Holding these little girls in my thoughts and prayers.

I do hope the medical teams are able to help both of them.

Gwyn

Diamonds-R-A-Girls-Best-Friend

Diamonds-R-A-Girls-Best-Friend Report 25 Sep 2013 23:18

Brenda I am so sorry to read this about Katie <3

Wishing both babies well<3 <3

Lesley x

Elizabethofseasons

Elizabethofseasons Report 25 Sep 2013 23:37

Dear Linda and Brenda

Hello


Sending my prayers and love to you both little ones. <3


Take very gentle care
Elizabeth
xx

kandj

kandj Report 25 Sep 2013 23:43

Ongoing thoughts and prayers for baby Katie and Linda's little granddaughter. Positive vibes sent to Brenda and Linda and their families at such a worrying time. xx

Sylvia

Sylvia Report 25 Sep 2013 23:50

Thinking of Katie and also Lindas granddaughter and wishing them well. Also their families who are all going through this with them.
xx

Purple **^*Sparkly*^** Diamond

Purple **^*Sparkly*^** Diamond Report 26 Sep 2013 07:06

Hope these little girls can build up strength to fight their ongoing battles and all the families can stay strong and positive. I have been thinking about them.

Lizxx

LindainHerriotCountry

LindainHerriotCountry Report 26 Sep 2013 10:05

I hope there is better news about Katie this morning Brenda, it is such a worrying time and so difficult for the family being away from home as well as having to cope with the special care unit

Esme was only in the unit for a week before she was allowed home and I was able to visit her several times as I had gone down to look after her three year old sister. It was very boring for her sister when she was visiting the unit and of course keeping a three year old quiet and out of the way was not easy. At least I could keep her at home while her parents sat with Esme, but your granddaughter can't do that.

It was better once Esme was allowed home after my daughter had been taught how to do the tube feeding and assessed as capable enough to do it

i hope Katie will soon be home as well

Sallie

Sallie Report 26 Sep 2013 21:45

Brenda, hope there is better news of Katie today. Thinking about her and the family and sending you all positive thoughts.

Also hope that Linda's granddaughter is improving and sending the family positive thoughts.

Love, Sallie.xx

kandj

kandj Report 26 Sep 2013 22:02

Gentle hugs for both baby girls and positive thoughts and prayers for all their families.

Sylvia

Sylvia Report 26 Sep 2013 22:14

Thinking of both little girls and wishing them well.

xx

AnninGlos

AnninGlos Report 26 Sep 2013 22:19

Thinking of both little Katie and Esme and wishing them better. So sad to see longed for little ones suffer, so hard for the parents. <3

supercrutch

supercrutch Report 26 Sep 2013 23:29

Ann has summed up my feelings exactly, far better than I could have expressed them.

Sue x

BrendafromWales

BrendafromWales Report 27 Sep 2013 19:42

Well,Katie had loads of tests yesterday,but we have to wait days or weeks to find results .suppose they grow things on cultures?
She is having a chest scan on Monday.
She is more relaxed and has her hat off now,and tubes fixed with tape ,so we can see pictures of her better.Still has ventilator and being tube fed,still trying to pull out tubes.
They have had 2 nights now in the suite,think little T is out of routine as he is still awake at midnight,but looking at pics taken of him today he still looks happy.
Hope little Esme is progressing well.

JustJean

JustJean Report 27 Sep 2013 20:15

Still praying for good results for the littlies,we all know miracles happen....
thinking positive thoughts for all your family Brenda especially the parents,

love and hugs for you all Love Jean xxx <3 <3

Sallie

Sallie Report 27 Sep 2013 21:45

Thank you for the update Brenda. Let's hope that they will have a diagnosis soon and can be treated. Sending positive thoughts and prayers to you all.
Lots of love and hugs to Esme and her brother. Bless them! <3 <3

Sallie.xx

Diamonds-R-A-Girls-Best-Friend

Diamonds-R-A-Girls-Best-Friend Report 27 Sep 2013 21:51

Wishing both babies well <3

Lesley x